Participant 10
Story
“The story of my map is roughly the same as when my story with this virus first began. I am still sleeping on my side and struggling with doing basic daily task, even though I can complete a few more tasks it is still difficult. I practice yoga when I can, and I spend time with God daily. Thank you all and be blessed. Journey: Before I became sick with covid-19 and later on diagnosed with long covid I worked 2 jobs; one as nursing assistant and one as an occupancy specialist. I lifted weights and did cardio 4-5 days per week. I also participated with my company in the Detroit Free Press relay marathon; I ran in it in 2018 and 2019. On both occasions my portion of the race included me running from Canada to the United States via the Detroit-Windsor tunnel. in 2020 a major life altering event happened to me, I became sick from covid-19. I was exposed to the virus from one of the patients while working in a nursing home. I have been severely ill before but experiencing covid is something that I would not wish on anyone. I went through a number of symptoms week 1: shortness of breath, fatigue, dry cough, malaise. Week 2 is when I came down with a fever. I was freezing and hot at the same time, it was one of the most frightening experiences I have been through and I have been in some distressing situations. My feet became crusty and I lost significant strength and ability in my gait, it became increasingly difficult for me to have a bowel movement and would sometimes take me 3 hours to find relief, I would rise in the morning vomiting and go to sleep vomiting. I was confined to my room, more specifically my bed all day and night, only getting up to use the bathroom. My body was so weak that brushing my teeth could take me 20 minutes from start to finish due to me having to take breaks walking to the bathroom, preparing my toothbrush, and brushing my teeth. I noticed that it became increasingly difficult for me to comprehend reading materials, now that really scared me. Any mental activity that required extended periods of focus and thought became very difficult. It also made me tired, my body was so weak that it would stall out if I overexerted myself, and by over exertion that means at that time getting dressed and walking down three flights of steps from my apartment to outside. My body would literally freeze, If I was walking I would not be able to walk another step unless I stood still for a minute or so and let my body rest. There is more to the story but I'll keep it short, I have improved in my gait and thinking slightly since 2020 but I still suffer through the symptoms and I am now disabled. I give praise to the living God for bringing me this far.” - COVID Long Hauler
Key
Body Posture: I created myself portrait with me lying on my side. I spent most of 2020 in my bed in this position. My body and mind were so tired that I could not bear to be anywhere else in my apartment nor lay comfortably in any position. I stayed here for hours sometimes sleeping up to 16 hours per day. The rest was spent doing the only thing I really could do and that was watching television and napping.
Marks on or under the skin: I experienced emotional trauma, of course I fell in and out of feeling sorry for myself to joy and taking up the challenge to do what I could for myself. My liver was affected. It became inflamed and was leaking fluid into my body. Brain fog and body pain/tingles and crippling fatigue.
Color:
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Grey: Illustrates the brain fog.
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Yellow: The body pain/tingles.
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Red: The inflammation and pain.
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Black: For the outline of the body and yoga mat
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Blue: For the kettlebells to show fatigue.
Shapes:
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Yellow lightning bolts
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Blue fatigue kettlebells
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Red inflamed organs
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Grey brain fog clouds
Personal Symbol: I attempted to create a yoga mat with a cross on it as my personal symbol. I went through physical therapy to strengthen my body and regain coordination, but the exercises were too difficult for me to complete. At one point I was not able to stand up tall and straight due to body weakness and pain. Yoga was the exercise that I could do periodically, and it strengthened my body to the point of me being able to stand tall.
Personal Slogan: My personal slogan is "Progressive Baby Steps." This is the formula I used to make progress. I lost so much ability to perform tasks for myself and I did not want to fall into depression and feel pity for myself. So, I focused on what I could do and worked on improving in that area before moving on. I focused on teeth brushing and then over time bathing myself and so on. Over time I improved in other areas.
Future: The future is bright I have been at the bottom so up is the only way to go. I will continue to push and do my best. It is my hope that this virus will one day be something we no longer worry about but learn from.
Message to others: My message to others is to make the best of everyday you have. Be thankful for what you can do even though it might seem minuscule. Before I got sick, I would take the stairs instead of the elevator just because I could. I worked with so many people that had disabilities I tried to not take anything for granted. Of course, I am human and life gets in the way and troubles seem to come. Just keep the faith and overcome. If you look back on your life you have overcome a number of challenges that you have forgotten about, this too shall pass.