Participant 8
Story
“Shows unexplainable things going on in my body. Covid 10/20 Long Covid continues. Vaccinated Moderna 2x and boosted 12/21- NOTE: After booster 12/21, 3 days of extreme reaction like severe covid. Day 4 all symptoms gone for about 2-3 weeks. Gradually came back but MOSTLY not as severe although some days were. One day in February all symptoms came on at once. Horrible. Dizzy, knees give out at times, nerve feeling through body, couldn’t swallow, diarrhea, foot hurt, knees hurt, body shaking, can’t sleep, horrible fatigue. Throughout 1.5 years symptoms came very regularly in 3-day intervals. Couldn’t sleep Extreme fatigue Dizzy Shaky Horrible “nerve” feeling through body but mostly in legs at night. Gastrointestinal issues Inability to swallow Memory issues- couldn’t remember common words when speaking Couldn’t remember or retain thoughts Knee 6 week. Hip 8 weeks. Foot pain 2 weeks. This year only hair loss for about 8 months Seeing a therapist for covid and general life disruptions issues, lack in person contact with family and friends” - COVID Long Hauler
Key
Colors:
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Black body outline
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Red pain
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Green is food
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Yellow and brown is hair
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Blue and cloud around head is fog
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Red in eyes is lack of sleep
Shapes:
body
outline of body outline indicates cyclical issues like knees collapsing, shakiness, dizziness.
zig zag lightening indicates pain or other "nervous" feeling
Personal Symbol:
Shamrock
Personal Slogan:
Live Each Day to the fullest
Marks on or under the skin:
sensation under skin throughout body
shakiness
can’t swallow
abdominal distress
cloud brain fog and memory loss
Message to others:
stay strong
pay attention to your body
stay in tune with new information about effects of covid
It has been EXTREMELY difficult to deal with all the symptoms with no recourse with diagnosis or treatment
It has been very difficult to not know the effects of the damage that covid may have done to my body and how to stop permanent damage.
PEOPLE DONT UNDERSTAND!
Support Structures:
Therapist and need medical support but no one knows how to help
Future:
I don’t know what will happen
Everything is unknown and unpredictable
I want to get better. I hope I do.
I need medical help with focus on covid symptoms to be understood and treated to to have a determination made that they will eventually go away.
I want normal health. I am getting older so normal health is going to change maybe.